London Family Faces Race Against Time to Save 9-Month-Old Daughter with Spinal Muscular Atrophy
London, UK – The family of 9-month-old Aiyla is facing a heartbreaking humanitarian crisis. Their daughter has been diagnosed with Spinal Muscular Atrophy (SMA) type 1, one of the most aggressive and deadly genetic diseases in children. The disease gradually weakens muscles, taking away the ability to move, swallow, and eventually breathe.
Doctors have given Aiyla’s parents a grim prognosis: without treatment, their daughter will not survive.
For Aiyla’s parents, every day is a struggle as they watch their daughter’s condition rapidly deteriorate. They have been told that she must receive life-saving treatment before her first birthday, when it is most effective. Time is running out.
The only hope for Aiyla is Zolgensma gene therapy, a treatment that can halt the progression of SMA and give her a chance at a normal life. However, the cost of this treatment is an overwhelming £600,000.
Aiyla’s family has already sold their possessions, taken out loans, and used up all their savings, but they are still far from being able to afford the treatment. In a desperate attempt to save their daughter, their close friend Sharif has started a fundraising campaign titled “Save Baby Aiyla – A Mother’s Last Hope to Keep Her” on the Crowdfunder platform.
Sharif shared, “I have seen the extreme despair of Aiyla’s family. It is unacceptable that a child who is physically weak but has strong self-confidence should lose her life just because of lack of money. This is not an appeal from an organization – this is the last wish of a parent. They cannot fight this fight alone, but together we can make it possible.”
The fundraising target for Aiyla’s treatment is £600,000, which will cover the cost of the expensive Zolgensma treatment and other necessary expenses such as travel and specialized care. Sharif believes that if 60,000 people donate £10 each, or 6,000 people donate £100, Aiyla’s life can be saved.
Every donation, no matter how small, is crucial in giving Aiyla a chance at life. Without treatment, her ability to breathe will continue to deteriorate, threatening her life.
Sharif emphasized that every penny raised will be used transparently to support Aiyla’s treatment, including the cost of Zolgensma gene therapy, hospital and specialized care, travel and transportation expenses, and ongoing support.
For those who are unable to donate, the family is asking the community to share their campaign using the hashtag #SaveBabyAiyla.
The campaign is verified on Crowdfunder UK, and Sharif and the family are urging people to donate and spread the word to help save Aiyla’s life.
To donate, please visit Aiyla’s Crowdfunder page at https://www.crowdfunder.co.uk/p/save-baby-aiyla-a-mothers-last-hope-to-keep-her.
For media inquiries, please contact Sharif, the campaign organizer and family coordinator, at nurussagirsharif@gmail.com.
About this campaign:
This campaign is organized and verified by Crowdfunder UK to help save the life of 9-month-old Aiyla through Zolgensma gene therapy.
